News
23.12.2022
2 years ago Head of Patient Association #OmirgeSen
- #SabilyaShugelova #MyTomorrows and #SareptaTherapeutics trusted me to lead #DMD project in Central Asia and Caucasus countries.
18.11.2022
First infusions with #Golodirsen #orphan medicine from Regional reimbursement for #DMDpatients in #Almaty, #Kazakhstan.
Next month plan to initiate treatment with #Casimersen. All #exonskippingtherapies in world are available for our patients.
17.11.2022
#WODC2022, Sitges, Spain. First time this kind of event.
New networks, new opportunities for our countries. #rarediseases, #PharmAccess #orphandiseasesinKazakhstan
03.10.2022
Service for ordering and delivering medicine from abroad https://zakazlekarstv.kz was lauched
zakazlekarstv.kz - Rare oncological medicine’ delivery from Europe to your door
13.06.2022
Just do it! Just support the patients and provide treatment
Thanks for everyone who contributed. Parents and child’s are heroes! #DMD #Kazakhstan #marketaccess
11.06.2022
Be with the patients!
Long-awaited treatment was achieved for #DMDpatients after finally well collaboration with all stakeholders!