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30.08.2023
School for Spinal Muscular Atrophy Awareness Month and Duchenne Myopathy Awareness Day by «Omirge sen»
17.08.2023
New patient enrollment with Golodirsen orphan medicine in Kazakhstan.
01.08.2023
New patient enrollment with Eteplirsen orphan medicine in Kazakhstan.
15.07.2023
Seminar for pediatric neurologists
13.07.2023
Lectures for doctors
31.05.2023
First infusions with Eteplirsen orphan medicine from Qazaqstan Khalqyna fund reimbursement for new DMD patients in Kazakhstan.
31.05.2023
First infusions with Golodirsen orphan medicine from Qazaqstan Khalqyna fund reimbursement for new DMD patients in Kazakhstan.
19.05.2023
During the period from March till May charity help for wards of «Omirge sen» fund was organized.
28.04.2023
First infusions with Eteplirsen orphan medicine from Qazaqstan Khalqyna fund reimbursement for DMD patients in Kazakhstan.
26.12.2022
The public fund Qazaqstan Khalkyna had delivered a number of medicine to the regions of Kazakhstan.
23.12.2022
2 years ago Head of Patient Association #OmirgeSen
18.11.2022
First infusions with #Golodirsen #orphan medicine from Regional reimbursement for #DMDpatients in #Almaty, #Kazakhstan.
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