Patient story
Rare Disease&Orphan Drugs
Children with neuromuscular diseases in Kostanay need Eteplirsen (Exondys 51)
Instagram account makpal_negmejanova
How children with orphan diseases in Kazakhstan are treated?
Diagnosis. Khabar24 channel. Kazakhstan
12 years old patient Dastan from Kostanay
one of the 118 patients with orphan diseases, was provided by medicine by Fund "Қазақстан халқына". Qazaqstan channel.